Category Archives: Foundation News

New program educates doctors, nurses about CdLS

We’ve launched a new outreach program aimed at educating medical professionals about CdLS. The program includes a postcard mailing to 75,000 neonatal/OB nurses, pediatric nurses/nurse practitioners and pediatricians from across the country. In addition to educating recipients about CdLS, the postcard (pictured) provides details on our new CdLS Diagnostic Criteria Checklist notepad, provided free to anyone in the medical field who requests it. The checklist can help professionals rule in or rule out a clinical diagnosis of CdLS.

The program–funded by the Centers for Disease Control and the American Legion Child Welfare Foundation–not only strives to put CdLS on the radar of medical professionals, but also to ensure accurate and early diagnosis of the syndrome.

If you know a doctor of nurse who would be interested in receiving a free notepad, you can direct him/her to our request form at


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Plant hope for people with CdLS

Help plant hope for people with CdLS by asking your friends and family to plant wildflower gardens this spring to support the CdLS Foundation.

Simply contact the CdLS Foundation to request your free Cornelia’s Garden kit, complete with seeds and the materials you need to ask 10 people to plant wildflowers in honor of a child with CdLS. They will be rewarded not just by the beauty of the flowers, but also by knowing they helped a child with CdLS grow and bloom.

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Mark CdLS Awareness Day May 8


  CdLS Awareness Day is Saturday May 8.  We’ve set up an Awareness Day web page with ideas and materials to help you raise awareness of CdLS in your own community.

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A joyous New Year to all

May the happiness of the season be yours throughout the coming year.

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Happy Thanksgiving

During the time of thanks, the staff of the Foundation (that’s us below) would like to thank everyone who gives their support, time and dedication to this organization and all of the families we serve: Thank you!



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A diVINE event to benefit the Foundation

Wine Tasting Side Bar 2009This fall, the Foundation introduces an event that is truly divine. New Englanders are invited to attend Vines, Wines and Meaningful Times, a wine tasting event in Coventry, CT to benefit the Foundation on September 26.

Guests enjoy a tour of the Cassidy Hill Vineyard cellars, taste unique wines, view the beautiful countryside, and spend some quality time with friends.

Proceeds help provide much-needed services to those affected by CdLS and their families. In the midst of a hectic-paced society, who knew that awareness and fundraising could be done by relaxing with a glass of your favorite wine? This event is sure to be a barrel of fun!

To RSVP  or to receive more information about hosting your own wine tasting to benefit the Foundation, email or call 800-753-2357. The Foundation is “grapeful” for your support! – JS

P.S. If you don’t receive our quarterly newsletter, Reaching Out, by mail, the new Summer 2009 issue is now available online. Click here to view our latest issue. Want to receive an email link to each new issue? Email to join the email list.


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Time to make some change

pennies for jessica graphic photoand  tagline onlyJust in time for fall, the CdLS Foundation is excited to announce it’s new program, which will use common “cents” to make some real change for those with CdLS. Introducing Pennies for Jessica, a fundraising program available to clubs & organizations throughout the country.

Pennies for Jessica is designed to increase awareness of CdLS in your community and raise funds to provide family support services to families affected by the syndrome. It’s inspired by Jessica, a young girl with CdLS from Mississippi, who began collecting pennies for the CdLS Foundation more than a decade ago. This program is open to any club or organization interested in supporting programs to help disabled children.

Here’s how it works: Representatives from clubs/organizations contact the CdLS Foundation to schedule a free presentation by a Foundation volunteer at a monthly meeting. The volunteers is provided with all the materials needed for a successful presentation. After the presentation, members are asked to distribute Pennies for Jessica collection boxes throughout their communities. Members also have the option of setting up tables at grocery stores and other high traffic areas and collecting the donations personally.

This program is designed to be easy. The event can start any time after the Pennies for Jessica presentation is given and can last for a week, a month, a season, or continually. The organization simply chooses a time frame and how many boxes it wants to distribute. That’s it!

Why participate?  The great thing about this event is that it benefits everyone. Funds raised support the Foundation and those it serves while clubs & organizations get a crash course in CdLS awareness while showing their support for disabled children and their commitment to community service.

We hope that Pennies for Jessica will truly “Provide Hope Through Change.” If you’d like to learn more about this event, know of an organization who’d like to participate, or want to volunteer as a presenter, please contact Gail at or call the office at 800-753-2357. Together, we can make a litte change go a long way! – JS

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