The Foundation’s blog was started to make connections. We hope to connect with families, doctors, friends, and whoever else drops by to read about Cornelia de Lange Syndrome and the CdLS Foundation. We have so much to share and even more to learn about you. The blog allows us all to talk on our own terms and convenience. It serves as a pipeline for sharing Foundation news, research updates, and details about upcoming CdLS events on a more current basis. Less need to wait for Reaching Out. (It is not a place to discuss medical issues nor is it a support group forum—those services are available through the Foundation web site.)
Enjoy!
Great to find a blog, live in a smaller place in Ontario Canada where there seems to be no one with CdLS except our little girl. I look forward to meeting others who are parents of kids with CdLS for support and sharing.
I know many of you have seen my CdLS photo galleries over the years, but perhaps there are some families that do not know about it. With Awareness Day just around the corner, I thought that it might be a good idea to share the CdLS Gallery photos with those who may not be aware of them. There are over 120 photos displayed from three National Conferences as well as several Family Gatherings. To view the CdLS Gallery enter: http://www.pbase.com/mburke11/cdls
Oh yes, I am Katherine’s, “Find One Child” grandfather.
Happy May 1st to all!
Thanks for sharing your beautiful photos Maurice. I know everyone will enjoy looking at the galleries. –Marie