Simply contact the CdLS Foundation to request your free Cornelia’s Garden kit, complete with seeds and the materials you need to ask 10 people to plant wildflowers in honor of a child with CdLS. They will be rewarded not just by the beauty of the flowers, but also by knowing they helped a child with CdLS grow and bloom.
Monthly Archives: April 2010
Feehan, of King of Prussia, and 14 of his friends and family take to the starting line of the 2010 Blue Cross Broad Street Run Sunday, May 2, as Team CdLS. The team is raising funds for children with Cornelia de Lange Syndrome (CdLS), a little-known genetic condition Connor was diagnosed with just before his first birthday.
“He’s faced feeding issues, gastroesophageal reflux, allergies, and delays in speech, development and growth,” says Feehan. “Despite these challenges, he’s made significant strides in his social skills and is a very active boy. He uses basic sign language to communicate and has a great group of friends—including several girlfriends.” Connor serves as Team CdLS “ambassador,” and will be there with mom Kellie to cheer on his dad and the others running for him.
All funds raised go to the national CdLS Foundation, which provides service and support to thousands of families just like the Feehans. The team’s goal was $10,000. To date, more than $20,000 has been raised, most of it by Feehan himself.