Monthly Archives: August 2009

Go the distance for kids with CdLS

team-cdls-logoOn October 11, Team CdLS runs the 26.2-mile Chicago Marathon in support of children with CdLS. You can be part of the event without ever hitting the pavement by joining Team CdLS in its second phantom marathon — no sneakers required.

You’ll experience the satisfaction of running for someone you love, without needing to stretch a muscle, quicken your stride or ice your knee. To learn more and request your Phantom Runner Kit, call 800-753-2357, email , or go online,

Go Team!


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Filed under CdLS Events, Fundraising

A diVINE event to benefit the Foundation

Wine Tasting Side Bar 2009This fall, the Foundation introduces an event that is truly divine. New Englanders are invited to attend Vines, Wines and Meaningful Times, a wine tasting event in Coventry, CT to benefit the Foundation on September 26.

Guests enjoy a tour of the Cassidy Hill Vineyard cellars, taste unique wines, view the beautiful countryside, and spend some quality time with friends.

Proceeds help provide much-needed services to those affected by CdLS and their families. In the midst of a hectic-paced society, who knew that awareness and fundraising could be done by relaxing with a glass of your favorite wine? This event is sure to be a barrel of fun!

To RSVP  or to receive more information about hosting your own wine tasting to benefit the Foundation, email or call 800-753-2357. The Foundation is “grapeful” for your support! – JS

P.S. If you don’t receive our quarterly newsletter, Reaching Out, by mail, the new Summer 2009 issue is now available online. Click here to view our latest issue. Want to receive an email link to each new issue? Email to join the email list.


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Filed under CdLS Events, Foundation News, Fundraising, Links