Monthly Archives: February 2009

Foundation welcomes a”board” Eileen Ahearn

ahearn2The CdLS Foundation is happy to welcome Eileen Ahearn, M.D., Ph.D., of Madison, WI,  to the board of directors.


This doctor does it all. The mother of a 20-year-old son with CdLS, Dr. Ahearn has been involved with the Foundation since 1998 and previously served on the board of directors from 1997 to 2003. Additionally, she has run the Chicago Marathon twice as part of Team CdLS and has served on the Foundation’s Clinical Advisory Board.


 Professionally, Dr. Ahearn is the Medical Director of Mental Health at the Madison V.A. Hospital and an associate professor at the University of Wisconsin.


The CdLS Foundation board of directors consists of parents, relatives and professionals workthing together to carry out the mission of the Foundation. Click here to see the full list of board members. -JS



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Rhode Island family fundraises with figure skates

canningdoug_and-dad-edit3Lace up those figure skates all you Rhode Islanders, because the 11th annual Canning family skating party takes the ice on Sunday, March 22. Michelle and Chris Canning hold this fundraising event to benefit kids like their 12-year-old son Douglas, who has CdLS. The party takes place from 4:30 – 6:30 p.m. at the Mickey Stevens Sports Complex, located at the Warburton Arena, 975 Sandy Lane in Warwick. 

This fun event has received great press coverage in recent years. Click here to read an article featured last year on, which tells the Cannings’ family story and highlights their skating party efforts.

Can you join in the skating fun as the Canning family heats up for this cool event? For more information, contact the Foundation,  Best wishes to the Cannings for another successful skating party! – JS

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Filed under CdLS, CdLS Events, Fundraising, Uncategorized

Book sale raises literacy and funds

the-boy-who-grew-flowers1If you’re looking for a great children’s book, you’ll definitely want to check out Dena Davis’ Web site, and cuddle up with The Boy Who Grew Flowers. This month Dena, mother of Ben (with CdLS) and a Barefoot Books stallholder, is donating 28% of the proceeds from her sales of The Boy Who Grew Flowers to the Foundation. To top it off, the book is on sale for $14.99. What could be better than reading with your children, saving money and donating to a good cause, all at the same time?!

This touching story promotes acceptance of the things that make us all different. You children will enjoy the illustrations that help depict how special we all are in our own ways. But don’t take my word for it. Purchase The Boy Who Grew Flowers in February and support the special children with CdLS who need our acceptance and love. Once you do, post your reviews here and help Dena spread the word! Happy Reading. – JS

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Filed under CdLS, Fundraising