Monthly Archives: April 2007

Horsey Family Featured on NPR

I have always been a fan of the personal interviews of StoryCorps, an oral history project that is broadcast each Friday on National Public Radio (NPR), but today was especially meaningful for everyone who cares for someone touched by Cornelia de Lange Syndrome.

Thom and Karen Horsey share the joy and grief of loving and losing their daughter with CdLS, Mary Lindell Horsey or as she was known to many, “Liddy.” Their story was featured on this morning’s NPR programming nationwide and is prominently linked on the NPR web site.

Thom and Karen, we thank you again for your courage in sharing your love and heartbreak. We are honored that you remain a vibrant part of the CdLS Family -dc

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