Through the years, people have gone to great lengths to support the Foundation—but none have gone quite as far as Jim Schiwal.
Jim is hiking the 2,175-mile Appalachian Trail, from his home state of Georgia to Mount Katahdin in Maine, to raise money for CdLS.
His inspiration is six-year-old Alley Grubb (in photo with Jim), a little girl [...]
In the January-February issue of Reaching Out, there is news of a study - Cornelia de Lange Syndrome: Parental Preferences Regarding the Provision of Medical Information - recently published in the American Journal of Medical Genetics. The study was authored by Dr. Alex Levin, the Medical Director for the CdLS-World Scientific Advisory Council, and Deborah Hinkson, a genetic [...]
If you’re buying holiday gifts for a child with CdLS, there are free resources for picking out the right toys. An excellent web site that identifies and rates toys for children with special needs is AblePlay.
The site scores toys in four disability categories: physical, cognitive, sensory and communicative. A review of each product and information [...]
The CdLS Foundation has been nominated for a third consecutive year to take part in Miracle Day, an enormous fundraising event hosted by CIBC World Markets (a bank/financial firm) on the first Wednesday of December each year.
Miracle Day is powered by the contribution of trading commissions on this special day (December 6th this year). Those contributions are then given [...]
Hello… check, check, is this thing working?
True, a rather silly way to begin a blog, but we are (at least I am) willing to be a little silly in order to reach out to people we’ve never really connected with before.
“Connecting” is what we do. Connecting parents with parents, children with doctors, and relatives and friends with each other. All in [...]
