Entries Tagged as ‘Links’

August 6, 2009

A diVINE event to benefit the Foundation

This fall, the Foundation introduces an event that is truly divine. New Englanders are invited to attend Vines, Wines and Meaningful Times, a wine tasting event in Coventry, CT to benefit the Foundation on September 26.
Guests enjoy a tour of the Cassidy Hill Vineyard cellars, taste unique wines, view the beautiful countryside, and spend some quality [...]

June 17, 2009

Have you read the news?

CdLS awareness is on the rise as families across the country get some great publicity. May was a month of increased activity to promote National CdLS Awareness Day, which was May 9. Since then, newspapers around the U.S. have been giving readers a good education about this syndrome and the families affected by it.
Click here to check [...]

June 10, 2009

Check out the new CdLS awareness flier

The CdLS Foundation is excited to reveal its new awareness flier! Be sure to check out the fresh new look and timely message designed to raise public awareness of Cornelia de Lange Syndrome (CdLS). We hope this flier helps others recognize signs and symptoms of the syndrome and help more children get diagnosed.
Click here to [...]

March 12, 2009

It’s a birdie, it’s an eagle, it’s a…golf tournament!

 

The onset of warmer weather marks the beginnings of the golf season. What better way to swing into spring than enjoying a great round of golf on a beautiful course while bringing hope to kids with CdLS?!
The 17th Annual CdLS Charity Golf Tournament tees off on Monday, May 18, at The Georgetown Club in Georgetown, [...]

January 6, 2009

What’s Your Resolution?

The dawn of every new year brings about “the list” – New Year’s resolutions. This year, why not deviate from the traditional dieting and makeovers and add a little philanthropy to your list? There are so many ways to make a difference in the lives of those affected by CdLS. While many of you have [...]