There is nothing more empowering, in my opinion, than walking the halls of Congress, bringing your message to the nation’s leaders. I’ve had the honor of doing that for the CdLS Foundation a handful of times over the past two years. During that time, I’ve figured out the Metro (the city’s subway system), mastered the Congressional buildings’ foot tunnels, and learned early [...]
We’re not the only ones who have a blog dedicated to CdLS. There are several parents documenting the daily joys and struggles of raising their child with CdLS while balancing work, home and family. Here are a few we’d like to share:
■ Ben and his brothers: Life with three boys and CdLS – The title of [...]
The CdLS Connects Grandparents Bulletin Board—an online forum for grandparents of children with CdLS—is up and running.
Grandparents play an important role in their child’s and grandchild’s lives—and they can also be a great resource for each other. Once registered for the bulletin board, users can post their questions or concerns and share their wisdom with [...]
CdLS Awareness Day was celebrated around the country this past Saturday. From California to Maine to Florida, families set up CdLS displays outside stores, hung fliers in coffee shops and did a range of activities to spread awareness of CdLS. One dad even set up a DVD player on the counter of the busy gas [...]
Brian Luyt is leaving the CdLS Foundation’s board of directors and we’ll miss him.
The tall Texan (and Katie’s dad) is watching his second three-year term expire and he rotates off of our volunteer board at the end of the year.
What I’ll miss most about Brian is his willingness to try anything to help other families of children with [...]
