During the time of thanks, the staff of the Foundation (that’s us below) would like to thank everyone who gives their support, time and dedication to this organization and all of the families we serve: Thank you!
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Entries Tagged as ‘Foundation News’
August 6, 2009
A diVINE event to benefit the Foundation
This fall, the Foundation introduces an event that is truly divine. New Englanders are invited to attend Vines, Wines and Meaningful Times, a wine tasting event in Coventry, CT to benefit the Foundation on September 26.
Guests enjoy a tour of the Cassidy Hill Vineyard cellars, taste unique wines, view the beautiful countryside, and spend some quality [...]
July 24, 2009
Time to make some change
Just in time for fall, the CdLS Foundation is excited to announce it’s new program, which will use common “cents” to make some real change for those with CdLS. Introducing Pennies for Jessica, a fundraising program available to clubs & organizations throughout the country.
Pennies for Jessica is designed to increase awareness of CdLS in your community [...]
June 10, 2009
Check out the new CdLS awareness flier
The CdLS Foundation is excited to reveal its new awareness flier! Be sure to check out the fresh new look and timely message designed to raise public awareness of Cornelia de Lange Syndrome (CdLS). We hope this flier helps others recognize signs and symptoms of the syndrome and help more children get diagnosed.
Click here to [...]
June 4, 2009
Golf tourney a swinging success
The 17th Annual CdLS Charity Golf Tournament was a swinging success. The event was held May 18 at the Georgetown Club in Georgetown, MA. More than 20 volunteers, 102 golfers, and 9 families of children with CdLS attended.
Although the day was overcast, the spirit of generosity shined bright. With the help of the Birdie Sponsor, [...]
