I’m writing today from the American Speech-Language-Hearing Association (ASHA) convention in Boston. Thousands upon thousands of speech-language pathologists (SLPs), professors and students have all descended on the Boston Convention Center for this annual event.Issues with speech and language are universal among individuals with CdLS, regardless if they are mildly or severely affected. As part of [...]
If you want to know what fruit flies, zebrafish and mice have to do with helping people with CdLS, we’ve got just the place for you. Visitors to the CdLS Foundation web site can now view summaries of CdLS and CdLS-related research articles—written in layman’s terms, for the most part. This new Research Articles page [...]
The Foundation is undertaking a first-of-its-kind outreach campaign this fall. We’re reaching out to speech-language pathologists (SLPs) from around the country, making sure they know about CdLS. We chose to target SLPs because nearly all children with CdLS struggle with speech and language—even those who are mildly affected.
The campaign includes direct mail (see below [...]
Seven Foundation volunteers made the journey to our Connecticut office this past weekend to take part in a volunteer training program. The daylong session aimed to provide both Awareness and Regional Coordinators (aka ACs and RCs) tools and information to help them do their “jobs” better.
Foundation staff talked about the myths of CdLS, scientific updates, [...]
The CdLS Foundation’s video, Find One Child, has made it national television debut. The nine-minute piece appears every Sunday at 8:30 p.m. (Eastern Time) on the Starfish Television Network—channel 9408 on the DISH Network. If you are not a DISH subscriber, you can tune in live at www.starfishtv.org.
Starfish Television Network—launched in April—is the nation’s first [...]
