During the time of thanks, the staff of the Foundation (that’s us below) would like to thank everyone who gives their support, time and dedication to this organization and all of the families we serve: Thank you!
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Entries Tagged as ‘CdLS’
July 24, 2009
Time to make some change
Just in time for fall, the CdLS Foundation is excited to announce it’s new program, which will use common “cents” to make some real change for those with CdLS. Introducing Pennies for Jessica, a fundraising program available to clubs & organizations throughout the country.
Pennies for Jessica is designed to increase awareness of CdLS in your community [...]
July 6, 2009
On the run in Indiana
For all you Midwesterners looking to get some exercise and raise money for a great cause, we have just the event for you: the 10th Annual Lapel Village Fair Run/Walk on Saturday, July 11. The event, organized by Tammy and Scott, parents to 19-year-old Conrad, benefits the CdLS Foundation.
The event begins at 7:30 a.m. at Lapel [...]
June 17, 2009
Have you read the news?
CdLS awareness is on the rise as families across the country get some great publicity. May was a month of increased activity to promote National CdLS Awareness Day, which was May 9. Since then, newspapers around the U.S. have been giving readers a good education about this syndrome and the families affected by it.
Click here to check [...]
June 10, 2009
Check out the new CdLS awareness flier
The CdLS Foundation is excited to reveal its new awareness flier! Be sure to check out the fresh new look and timely message designed to raise public awareness of Cornelia de Lange Syndrome (CdLS). We hope this flier helps others recognize signs and symptoms of the syndrome and help more children get diagnosed.
Click here to [...]
