Next Saturday, June 6th kicks of the CdLS Foundation’s first annual Yard Sale Across America. We hope to have at least one yard sale in every state! The money raised will help provide much-needed support services to individuals and families around the country affected by CdLS. With just one week to go, volunteers in 30 [...]
Entries from May 2009
May 14, 2009
CdLS Awareness Day Recap
Across the United States, families marked the 20th annual observance of CdLS Awareness Day, Saturday, May 9.
Governors in Maine, Alabama, Connecticut, and Mississippi signed Awareness Day proclamations, as did numerous town and city officials throughout the country.
Families were featured in newspaper articles from Washington state to New Hampshire (visit the CdLS Foundation media room for [...]
May 8, 2009
Cornelia de Lange Syndrome Awareness Day marks 20 years
Cornelia de Lange Syndrome Awareness Day marks 20 years: Two decades later, families of children born in 1989 struggle for awareness, understanding
NATIONAL (May 9, 2009)—Even as the 20th anniversary of Cornelia de Lange Syndrome (CdLS) Awareness Day is marked on May 9, many people still ask, “C-d-what?”
While 20 years has seen much scientific success, including the discovery [...]
May 7, 2009
Bid to benefit kids with CdLS
Just in time for National CdLS Awareness Day, Amy from Missouri is hosting an eBay jewelry fundraiser to benefit the CdLS Foundation. Amy’s three-year-old son, Levi, has CdLS, and according to her, “We feel it is our turn to give a little back [to the Foundation].”
The fundraising auction takes place online from May 9 – 14. Choose [...]
