Entries from January 2009

January 29, 2009

Hockey is more than just a game for Matt

Matt with the Sound Tigers coach

For those not up on their hockey news, there’s a cool story posted on the American Hockey League’s Web site about Matt, a 13-year-old CT boy with CdLS who may be the biggest Bridgeport Sound Tigers fan.
In the midst of New England’s below freezing temperatures, this story is definitely a heart warmer! The [...]

January 22, 2009

Hey Atlanta — on your mark, get set, go!

Runners and walkers in the metro-Atlanta area have a good reason to get out of a bed on a cold February morning — the fifth annual For the Love of It 5K Run/Walk to benefit children with Cornelia de Lange Syndrome (CdLS). The inspiration behind the event is 5-year-old Maya, daughter of race organizers Jim and [...]

January 14, 2009

“Leaping” to help those who can’t

 The CdLS Foundation is excited to introduce its newest, and by far cutest, fundraising event to date: Leaps of Love, a Valentine’s Day-inspired program for little kids. The event takes place this February in child care centers and elementary schools (suitable for grades K – 2) across the country. 
Children “leap” to raise funds to benefit individuals with CdLS (many of [...]

January 6, 2009

What’s Your Resolution?

The dawn of every new year brings about “the list” – New Year’s resolutions. This year, why not deviate from the traditional dieting and makeovers and add a little philanthropy to your list? There are so many ways to make a difference in the lives of those affected by CdLS. While many of you have [...]