In the midst of all the holiday madness, take a moment to check out something truly inspirational. Maegan, 34, from Greensboro, NC , has CdLS and recently created her own Web page to raise awareness of the syndrome.
Maegan’s Web page creation was part of her graduation project at Partners in Policymaking, a national program that helps promote advocacy for individuals with developmental [...]
Entries from December 2008
December 23, 2008
Online Inspiration
December 15, 2008
Share Your Story for Rare Disease Day
The Foundation is happy to announce its participation in Rare Disease Day, taking place February 28, 2009. The purpose of Rare Disease Day, sponsored by the National Organization of Rare Diseases (NORD), is to join people all over the country in raising awareness of rare conditions.
A “rare disease” is any medical condition affecting fewer than 200,000 people in [...]
December 9, 2008
“One of a Kind” Support
Shekinah Designs necklace
Whether you’re searching for a unique holiday gift or the perfect new addition to your jewelry collection, look no further!
Sandra Pasqualone-Cooper, custom jewelry designer and mom of Joy, who has CdLS, has decided to donate 50% of profit sales from her jewelry Web site, Shekinah Designs, in the month of December to benefit the CdLS Foundation. [...]
December 4, 2008
Support the CdLS Foundation in Style
For those who haven’t heard the news, the CdLS Foundation’s online store is back in action with a new variety of logo apparel and gifts. From t-shirts, sweatshirts, onesies, and hats to tote bags, teddy bears, mugs, and calendars, our store has everything you need to fashionably sport the CdLS Foundation and/or Team CdLS logos. [...]
