A big high-five to our volunteers

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Seven Foundation volunteers made the journey to our Connecticut office this past weekend to take part in a volunteer training program. The daylong session aimed to provide both Awareness and Regional Coordinators (aka ACs and RCs) tools and information to help them do their “jobs” better.

Foundation staff talked about the myths of CdLS, scientific updates, ways to raise awareness, hosting a family gathering, and legislative outreach, among other things. But it wasn’t all business. Several of us enjoyed getting to know each other over manicotti and stuffed eggplant the night before.

Folks came from as far away as Washington, Utah and Florida – and we certainly appreciated them taking the time out of their busy lives to spend the day with us. We hope they went home with helpful tips and a dose of inspiration.–MM

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