Team CdLS heads to Chicago Sunday, October 7, for the LaSalle Bank Chicago Marathon. Among the 19 runners (our largest group yet) are 5 relatives of children with CdLS (including 3 parents), a NICU nurse who cared for a baby with the syndrome, a medical student, a graphic designer, and a Pilates instructor.
Team CdLS [...]
Since raising awareness of CdLS is a huge priority for me, you can imagine my delight when a young girl with CdLS was featured on CNN.com–the cable giant’s popular web site–this week. Four-year-old Maya Pomfret from Georgia is one of the “stars” of a photo-web feature about a swimming program (www.swimmerman.com) near Atlanta.
Follow the link below and see for [...]
Seven Foundation volunteers made the journey to our Connecticut office this past weekend to take part in a volunteer training program. The daylong session aimed to provide both Awareness and Regional Coordinators (aka ACs and RCs) tools and information to help them do their “jobs” better.
Foundation staff talked about the myths of CdLS, scientific updates, [...]
The CdLS Foundation’s video, Find One Child, has made it national television debut. The nine-minute piece appears every Sunday at 8:30 p.m. (Eastern Time) on the Starfish Television Network—channel 9408 on the DISH Network. If you are not a DISH subscriber, you can tune in live at www.starfishtv.org.
Starfish Television Network—launched in April—is the nation’s first [...]
