There is nothing more empowering, in my opinion, than walking the halls of Congress, bringing your message to the nation’s leaders. I’ve had the honor of doing that for the CdLS Foundation a handful of times over the past two years. During that time, I’ve figured out the Metro (the city’s subway system), mastered the Congressional buildings’ foot tunnels, and learned early [...]
We were thrilled to meet Hiker Jim last night as he made his way through Connecticut. As some of you know from previous posts here, Jim has been hiking the Appalachian Trail and raising money ($2,000 to date) and awareness for the Foundation along the way.
Several staff members were able to get together with Jim, [...]
We’re not the only ones who have a blog dedicated to CdLS. There are several parents documenting the daily joys and struggles of raising their child with CdLS while balancing work, home and family. Here are a few we’d like to share:
■ Ben and his brothers: Life with three boys and CdLS – The title of [...]
The CdLS Connects Grandparents Bulletin Board—an online forum for grandparents of children with CdLS—is up and running.
Grandparents play an important role in their child’s and grandchild’s lives—and they can also be a great resource for each other. Once registered for the bulletin board, users can post their questions or concerns and share their wisdom with [...]
