Hiker Jim: 1,500 more miles to go for CdLS

Just a quick update on Hiker Jim, the Georgia man walking the Appalachian Trail raising awareness and money for the Foundation along the way (more than $1,000 to date).
 
Jim started his journey—dubbed Walk for Alley in honor of a little girl with CdLS in his hometown—in February. He had a string of bad luck at first [...]

CdLS Awareness Day: A time to come together

CdLS Awareness Day was celebrated around the country this past Saturday. From California to Maine to Florida, families set up CdLS displays outside stores, hung fliers in coffee shops and did a range of activities to spread awareness of CdLS. One dad even set up a DVD player on the counter of the busy gas [...]