Through the years, people have gone to great lengths to support the Foundation—but none have gone quite as far as Jim Schiwal.
Jim is hiking the 2,175-mile Appalachian Trail, from his home state of Georgia to Mount Katahdin in Maine, to raise money for CdLS.
His inspiration is six-year-old Alley Grubb (in photo with Jim), a little girl [...]
Entries from February 2007
February 21, 2007
One man’s journey for CdLS
February 9, 2007
Study Says “Good Job!”
In the January-February issue of Reaching Out, there is news of a study – Cornelia de Lange Syndrome: Parental Preferences Regarding the Provision of Medical Information - recently published in the American Journal of Medical Genetics. The study was authored by Dr. Alex Levin, the Medical Director for the CdLS-World Scientific Advisory Council, and Deborah Hinkson, a genetic [...]
