December 22, 2006...3:40 pm

Gatherings Make Ordinary Days Feel Like Holidays

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Over the past few months, families in four states came together to share the joys and struggles of raising a child with CdLS.

At family gatherings in New York, Wisconsin, Massachusetts, and California, old friends caught up and new friendships were made. Alongside families who had been to many gatherings, were “first-timers” who had never seen another child with CdLS before.

In New York, a new mom and dad had a dozen family members in tow. In Wisconsin, they celebrated a 13th birthday. In Massachusetts, a young woman with CdLS inspired all as she shared her experiences as a college student. And attendees at the California gathering last week were treated to a visit by the man in red himself.

These family get-togethers—which have been going on longer than the Foundation has been around—provide a few hours of laughter, support and advice-swapping. Most importantly, gatherings offer comfort to families who may have thought they were alone.

See some of the magic yourself at our family gathering slideshow.

We hope to see you at a Foundation family gathering in 2007. Until then, we offer you this simple Irish blessing:

May you have warm words on a cold evening,
A full moon on a dark night,
And the road downhill all the way to your door.

We wish your family a peaceful and joyous holiday season and a new year that is filled with hope and love!

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