We’ll Leave the Luyt On, Thank You

Brian Luyt is leaving the CdLS Foundation’s board of directors and we’ll miss him.
The tall Texan (and Katie’s dad) is watching his second three-year term expire and he rotates off of our volunteer board at the end of the year.
What I’ll miss most about Brian is his willingness to try anything to help other families of children with [...]

Gatherings Make Ordinary Days Feel Like Holidays

Over the past few months, families in four states came together to share the joys and struggles of raising a child with CdLS.
At family gatherings in New York, Wisconsin, Massachusetts, and California, old friends caught up and new friendships were made. Alongside families who had been to many gatherings, were “first-timers” who had never seen [...]

CdLS In the News: This Boy is Not Your Average Kid

The Highberger family of Nebraska really knows how to throw a party. For their son Colt’s 10th birthday bash, several hundred friends and family came together to celebrate Colt and to raise money for the CdLS Foundation. 
 
This is the third year in a row the Highbergers have included local residents in Colt’s birthday celebration. No surprise, Colt is [...]

Meet Deirdre

Deirdre Summa, MSW, joined the CdLS Foundation staff recently as a family service coordinator. She’s here to provide information and personal support to families and caregivers of individuals with CdLS.
Deirdre earned her master’s degree in social work from Springfield College in Massachusetts and completed her internship at the University of Connecticut Health Center, working with [...]