The CdLS Foundation blog is moving to http://blog.cdlsusa.org on our brand new Web site. Be sure to check it out at www.CdLSusa.org.
Happy Holidays from the CdLS Foundation
Filed under Uncategorized
Making a giant impression …
We’re excited about the first-ever CdLS billboard. Drivers on State Street in Lemoyne, PA, are passing by a larger-than-life photo of Hannah, an area girl with CdLS who is the inspiration behind a Zumbathon to raise money for the CdLS Foundation. The event takes place December 5, from 2 – 4 p.m. at Art in Motion Fitness in Lemoyne.
A big thanks to Lamar Advertising of Harrisburg who provided the billboard pro-bono to the event organizers. For information on the Zumbathon, email events@CdLSusa.org.
Filed under Fundraising
Helping children understand CdLS
Here at the CdLS Foundation, we just love the new book, Melanie and Tommy Have Two Pet Rats and One Syndrome. It’s an educational, fun book written from the perspective of a little boy whose sister has CdLS. Many parents ask if we have anything to educate young children about CdLS, and I would recommend this. It’s a great tool for helping siblings, classmates and other children understand CdLS and special needs in general.
The 40+ page book has lots of photos and is authored by Tommy and his mom, Nathalie. You can buy it several places online, including Amazon. To learn more about Tommy and Melanie, visit their web site at www.2petrats.com.
(P.S. The Foundation doesn’t benefit financially if you buy the book. We simply think it’s a great tool.)
Filed under CdLS
Team CdLS debuts at NYC Marathon
For the first time, Team CdLS is represented in the ING New York City Marathon, taking place November 7. The team is a participating member of the New York Road Runners Community Charity Program.
Among the 10 team members are five parents, one sibling, one relative and three friends of children with CdLS. Two ofthe runners— Beth Smisloff of Ballston Spa, NY, and David Fowler of New York, NY—just completed the Chicago Marathon October 10 as part of Team CdLS.
Smisloff and Fowler will be joined in New York City by Liana Davila of Dobbs Ferry, NY; Carol Campbell of San Francisco, CA; Lori Griffin of Newtown, CT; Hunter Jackson of Salt Lake City, UT; Katharine Gill Law of New York, NY; Susan Leone of Hawthorne, NY; Peter Uzzi of Avon, CT; and Amanda Woodall Lexington, KY.
The team’s goal is to raise $25,000. So far this year, Team CdLS has raised more than $130,000 in races in Manhattan Beach, CA, Philadelphia, PA, Albuquerque, NM, and Chicago, IL. All money raised by Team CdLS goes to the CdLS Foundation in support of its program and services for individuals with CdLS and their families.
Donations to Team CdLS can be online at https://www.cdlsusa.org/secure/donation.asp or by calling 800-753-2357.
Filed under Fundraising
